Category Archives: If We Came with a Manual

What I’m learning from yoga, massage, injuries, illness, maximal healing/health, interest and others that would be nice to have included if we were born with a manual attached.

11 Ways to Support a Seriously-ill Person

These are suggestions to support someone who is seriously or chronically ill rather than someone with the flu, though none of these suggestions will harm the acutely sick. This is not intended to be universal for everyone, but will hopefully help others approach this challenging issue in ways that are helpful for the ill and their caregivers. Feel free to comment with your own experiences.

1) Simplify their routine and physical space for rest and safe mobility

2) Volunteer to clean, run errands, drive them places, and care for pets or children

3) Provide nourishing food that’s easy to eat and digest

4) Take time for yourself

5) Listen, and remain present even in silence

6) Comedies

7) Touch

8) Ambient music

9) Children’s audio books and reading aloud, especially uplifting stories

10) Engage the person in any activity that interests them

11) Be an advocate

Examples:

1) Allow the person to rest as much as needed (our cells regenerate when we’re deeply relaxed as in meditation and when we sleep. We also do our psychological integration during sleep). Gentle to moderate movement is also important when not sleeping or deeply resting since it helps circulation, the lymph system (which destroys pathogens) and maintains joint mobilization. Movement is helpful unless the person is too ill to do so. Respect individual need.

Remove obstacles in a pathway, not only to prevent injury but also to create mental ease. And declutter declutter declutter…I’m not a neat-nik, but a clean environment is critical when one is seriously ill. When the body is struggling, the mind is as well, so is easily overwhelmed by sensory information.

2)  Keep the environment clean for the person, care for their pets and children, or whatever they need help with such as groceries, appointments, or possibly driving them to a pretty place for even a five minute visit if they’re able to leave their bed or home.

3) Well-cooked rice is generally digestible even for the very ill, though ground baby-food rice is an alternative if someone is too sick to even digest soft rice. Consider using organic foods when possible to reduce pesticides or herbicides from further stressing a person’s system. The benefit of chicken soup is not a myth. Bone marrow broth is also rich with healing minerals, glucosamine and other substances that bouillon cubes do not offer. Organic miso is another healing and generally easily digested food. Patients in Japanese hospitals, who had miso soup three times a day, experienced far lower rates of cancer and other post-atomic bomb illness in Nagasaki and Hiroshima than the non-hospitalized population. This is how we learned that miso reduces radiation effects. Here’s another miso soup recipe.

4) Get a massage, dance, practice yoga, walk, visit a friend, play with a dog, sauna, meditate, play a game, participate in a sport, create, nap…whatever you need to do to restore yourself. Caregiving is hard work, even when it’s not full time.

5) Actively listen when the ill person speaks. If they would prefer to have you speak, perhaps tell them stories or read to them…preferably uplifting stories so the brain maintains positive associations. It may also help to sing. Few interactions provide the soothing quality of song, which may also help you. If silence is needed, simply breathe as they breathe. Following breath, yours or theirs, is a powerful method of maintaining or developing presence.

6) Comedies may help when someone is disabled or chronically ill. Some good ones include “When Harry Met Sally,” “Robin Williams: Live on Broadway” “Groundhog Day”, “Amelie,” the best of SNL with Steve Martin and the like, and TV series like “Arrested Development” “Gilmore Girls” “Modern Family” “Seinfeld” and “The Simpsons.” Anything that provides laughter is invaluable for both the ill and their caregivers.

7) Touch offers comfort, can ease anxiety, and may establish connection even in the absence of verbal communication. Obviously one must remain respectful and empathetic to what the sick person is comfortable with in terms of location, pressure and type of touch(caress to stillness) and a few people will not want touch at all; instead, only the nearness of someone who cares about them. However, even gently holding another’s hand can provide connection that effects the primal brain, thus reducing fear and stress. Massage, even as simple as a gentle hand or foot massage, can increase endorphins. Pressure can even trump pain, which is why if we hit a shin we often press on it to relieve the pain.

8) “Music for Airports” by Brian Eno, some ambient stations, hearts in space, or any style of music that the person especially loves (this can change with serious illness) can be surprisingly helpful. When everything is overwhelming to one’s system, the simplicity of ambient music in the background is soothing for everyone.

9)  Ask a librarian or independent book seller for good audio books and books to read aloud. The Secret Garden, The Thief Lord, and McCall Smith’s The No. 1 Ladies Detective Agency are engaging audio books. Children’s books are especially good to read aloud as are some of David Sedaris’ stories. Children’s writing is often uplifting and well-written. Consider Winnie the Pooha classic for almost any age, especially when one feels vulnerable.

10) You may want to talk about pets, loved ones, music, fashion, astronomy, gardening, whatever might interest the person enough, however temporarily, so that they can focus on something other than how they’re feeling, mortality, and the like. I’m not suggesting that these issues shouldn’t be discussed, only that if you can connect them to something that enlivens them, it may be helpful.

11) Help them with insurance forms and companies; applying for disability or other needed resources; and accompany them to medical visits. Illness itself can be overwhelming without also having to track every option a medical professional suggests, or having to remember the answer to every question asked, or waiting on hold till a call is answered by a company, or filling out extensive forms. During appointments the person may want you to speak for them or ask clarifying questions about medicines, procedures, treatment, recovery, options, that may be too overwhelming for the individual to navigate alone.

(“Pandora” is a close-up of a pastel-in-progress)

Crutches: five-tip-list

My six week anticipated period on crutches turned into many months due to complications. Fortunately I made some modifications early on that helped get through this long period.

1-  Wear a good pair of gloves with excellent padding to protect the palms as well as the area between the forefinger and thumb. I used a pair of cycling gloves that I now use for free weights.

2-  Adjust the height of the crutches and handgrips so that the crutches permit appropriate distribution of weight and balance without leaning the armpits on top of the crutches.

3-  Wrap the hand and shoulder bars of the crutches with bubble wrap and secure with packing tape to provide extra shock absorption and prevent inevitable digging into the ribs or bones of the hands.

4-  Resist resting your armpits on the crutches, especially easy to do when you’re tired. It’s bad for the arms, shoulders, neck and spine. Instead, lift as if lengthening the spine while standing in a yoga class and try to maintain as “normal” a gait and stance as possible while using the crutches.

5-  Hardwood floors enabled me to use an adjustable-height office chair with rollers to get around without crutches. Sitting on the seat, I’d use my arms and non-casted leg to get around. While washing dishes and similar activities, I’d rest my casted leg on the seat and stand on my uninjured leg to maintain normal standing posture in the pelvis and spine. Sometimes I’d also use the chair like a high skateboard to scoot around–my casted leg resting on the seat, arms controlling the direction with the seat back, but be careful. Your main task is to keep yourself safe from further injury while maintaining as much physical balance, strength and flexibility as possible. My friend rented a cart specifically designed for this purpose post-foot surgery so see what’s available in your area. Once I was able to bear weight, I started “walking” while sitting in the chair to build my atrophied leg muscles.

(And remember: the only positive about crutches is that you can go to the head of lines!)